The role of patients in clinical research - Folkemødet/The People's Political Festival 2018 - Allinge
Patient engagement and participation have always been important to the development of new medicines. A new Danish survey (soon to be published) made by the Danish Diabetes Association and patient network EUPATI shows that patients are very interested in contributing to research and they feel comfortable participating in trials. But they lack knowledge on clinical trials, drug development and enrollment opportunities.
At the same time, the winds of change are blowing and patients are increasingly invited to participate in decisions on research priorities and how trials can be designed to fit patients’ lifestyles and interests.
Taking our point of departure in this new survey, international experiences and real patient stories, we will debate: What are the benefits of reaching out to patients when deciding which medicines to research and develop? What is the limit to meaningful patient engagement? What are the barriers? And will more patient involvement increase the relevance of drug development and patients’ interest in research participation.
Panelists in debate to be announced.
(Debate will be in Danish)
More information: folkemoedet.dk/en/